A Week of Self-Care – Day 7 – Community

I’m pretty good in my own company. I need plenty of time alone doing quiet, reflective activities and this has been a key part of my self-care as I have been recovering from illness over the last few weeks, gently gathering my strength and energy in the peaceful surroundings of my home. I recognise the importance of this for me, but I also think it’s vital to feel part of my community. We all need a sense of belonging, of sharing and of company.

This can be a real challenge for me when I become housebound for lengthy periods of time, but as I’ve been writing these self-care posts this week, it’s become clear to me that I manage to maintain elements of each practice even when I’m very unwell. Being part of a community can be just as flexible. Over the last few weeks I’ve had carers, family and neighbours popping in, even the doctor and chemist, as my community has come to me. I’ve been able to embrace social media at its best, being part of inspiring and uplifting online crafting, meditation and local groups, and enjoying the growing community this blog is creating.

During the last couple of days, as I have begun to feel the benefits of all my self-care practices, I have been able to go beyond my garden gate and once again feel fully part of the beautiful community I live in. I viewed a stunning exhibition at my local church, Thaxted’s People, by Andy Griffin. As I looked at the beautiful portraits, each with their own story to tell, I was reminded that I too have a place here.

That brings me to the end of my mini series on self-care. I have enjoyed sharing each practice with you and I truly hope it inspires you to give yourself the care you need. Part of my self-care routine is to have regular breaks from my blog writing, so I will be back with a new post in a couple of weeks.

 

‘Christmas Connections’ – how the powerful loving kindness (connection) meditation helps me embrace all humanity and feel part of my community even when I am physically isolated.

 

 

 

 

 

Thaxted Online is a new Facebook page that shares all that is so special about Thaxted, including some beautiful photos, old and new. My thanks for their kind permission to use their image for today’s post.

 

 

 

 

A short film capturing the stunning exhibition, Thaxted’s People, by Andy Griffin.

A Week of Self-Care – Day 1 – The Call to Self-Soothe

A Week of Self-Care – Day 2 – Meditation

A Week of Self-Care – Day 3 – Nourishment

A Week of Self-Care – Day 4 – Movement

A Week of Self-Care – Day 5 – Nature

A Week of Self-Care – Day 6 – Creativity

A Week of Self-Care – Day 6 – Creativity

I can’t  remember a time when I wasn’t creating something; music, cards, sewing, crochet, knitting, writing, colouring and drawing, it doesn’t really matter what it is, it’s the process I love.  When I make something, I feel inspired, absorbed, hopeful and accomplished. I often think that as long as I have a creative outlet, I am okay.Read More

A Week of Self-Care – Day 4 – Movement

When subjected to bedrest, the body loses muscle mass at around 12% a week. Of course, it’s sometimes necessary to rest in bed when you’re unwell, and it’s what I needed during the most acute phase of my labyrinthitis, but that knowledge was a motivator to move. Not only that, but movement is vital to maintain healthy neural pathways to help my FND, and it is also as a key component of my pain management. Added to that, I knew that for my vestibular system (balance) to recover, it needed to be challenged. In other words, I had to move!

I have a range of movement practices I incorporate in my day, suitable for times ranging from when I have minimal automatic movement to those when my movement is at it’s strongest and most fluid. Even if my body is in a state of paralysis, it is still moving with the breath. That’s always my starting point, followed by mindful movement; a moving meditation that helps me regain body awareness. I then tap into my neurophysio techniques, working on my sit to stand as the basis for functional movement, and weight shifting side to side to generate some rhythm and momentum. My yoga practice ripples throughout it all. During the past few weeks I have practised yoga in bed, in my wheelchair, and I am this week starting to get back down on my mat. I am taking it incredibly gently, constantly tuning into my body and adapting what I do to meet my needs. To get some movement going feels liberating. My body feels alive as I sense energy coursing through my cells. I feel more present and I’m gradually regaining strength.

 

‘Adaptive Yoga Poses’ – In this toolbox you can find a month’s worth of adaptive yoga poses I completed in 2016 for the Mind Body Solution’s ‘Kiss My Asana’ Yogathon.

 

 

 

 

 

 

 

‘FND Movement Toolbox’ – A chart sharing some of the neurophysiotherapy techniques I use.

 

 

 

You can find an introduction on mindful movement by Breathworks, followed by a series of guided movements on Soundcloud.

 

A Week of Self-Care – Day 1 – The Call to Self-Soothe

A Week of Self-Care – Day 2 – Meditation

A Week of Self-Care – Day 3 – Nourishment

A Week of Self-Care – Day 3 – Nourishment

‘Let food be thy medicine and medicine be thy food.’ I think Hippocrates got it right over 2000 years ago. It’s the underlying principle I follow and I am a firm believer that food can either fuel health or feed disease.

I’ve always been one for little often, a ‘grazer’ as I remember my Paediatrician once commenting. When I’m particularly unwell, my digestive system shuts down as energy is diverted elsewhere and I quickly lose weight. I turn to mini meals that are as nutrient dense as possible.Read More

A Week of Self-Care – Day 2 – Meditation

Meditation is at the heart of my self-care. It brings me peace and stillness, whatever turbulence may be happening outside or within. It grounds and settles me. It is key to my symptom management. It enables me to tune into my needs and it informs all other aspects of my self-care routine.Read More

A Week of Self-Care – Day 1 – The Call to Self-Soothe

Three weeks ago I woke up, went to get out of bed and veered violently to the right. With FND, my body can make some interesting moves, but this was a new one. I was unable to sit up or even transfer into my wheelchair. I had completely lost my sense of balance, my head hurt, I felt sick and I was utterly exhausted. My GP came out and diagnosed viral labyrinthitis, an inner ear infection. She prescribed medication to help with the acute phase and warned me that the illness was unlikely to mix well with my FND.Read More

Walking Meditation

People often believe that meditation has to be done in a rigid, seated position, but even Buddhist monks practise mindful movement in the form of walking meditation. Formal walking meditation can look (and feel) a bit strange. The idea isn’t to reach a specific destination, but to walk intentionally, often back and forth. It tends to be a slower, more deliberate pace than ‘normal’ walking, as you guide your awareness to the movements you usually make automatically, for example how your feet move and the feeling of your body weight shifting from side to side, as well as paying attention to your breath and surroundings. As with other mindfulness practices, when you notice your mind has wandered, you gently guide it back to the focus of your attention.Read More

An Evening With Jon Kabat-Zinn – Part 1

My formal mindfulness practice began five years ago when I read ‘Full Catastrophe Living’ by Jon Kabat-Zinn, ‘the father of mindfulness’. I quickly discovered the positive impact this had on my health and wellbeing. It was a large part of my jigsaw puzzle that until then had been missing. It is perhaps no coincidence that it came during the same year when the rest of my life had been taken to pieces; I was being forced to contemplate a new way of being in light of a neurological diagnosis and complete change of life circumstance, and Jon’s work opened the door to what continues to be a wonderful, nourishing and inspiring journey. Jon’s presence can be felt even through his books and recordings, and it has always been a dream of mine to experience it in real life, to meditate with him and have the opportunity to thank him for the profound influence he had on me at an incredibly difficult time.Read More

When Waves Become Ripples – A Sign of Progress in Mindfulness

Practising mindfulness is a process. It’s not about trying to get something, but about living and being, allowing the practice to unfold just as life does. There is no end point but that doesn’t mean we don’t make progress. Every so often, something happens that makes me realise just how far I have travelled. It’s a moment to acknowledge, to explore and to celebrate.Read More

A Lesson In Patience

There’s a lady in the bed opposite. She’s waiting patiently with such elegance and poise. Later today she is having surgery to remove a tumour from her brain. She’ll be awake during the operation. She’s been warned of possible complications; loss of function and changes in personality. She waits, calmly. “It’s okay for me,” she says, “this is a one-off. It’s you I feel for having an ongoing condition.”

There’s a lady in the bed alongside me. She’s been waiting for hours, days, for tests she desperately hopes will reveal answers. “I just want to know what’s wrong,” she says, jumping up every time someone approaches her bed. I don’t know what’s tormenting her more, the waiting or the unknown.

As for me, my bags are packed and I’m waiting to go home. My face lights up as I think of seeing my kitties and being in the peace and quiet of my little oasis. But here I find myself, waiting.Read More